When Your Child Has Lyme Disease: A Parent's Survival Guide



ISBN 978-0-9962243-0-7



ISBN 978-0-9962243-1-4


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 About authors Sandra Berenbaum and Dorothy Kupcha Leland

Sandra Berenbaum (right) and Dorothy Kupcha Leland (left) have first-hand experience with the burdens faced by families coping with tick-borne illness. "Lyme disease affects the whole family, not just the person who is ill," they say. The authors hope this book will help parents and their children find a path to healing.




Sandra BerenbaumLCSW, BCD, has a psychotherapy practice that focuses exclusively on Lyme disease patients and their families. In private practice for more than 25 years, Berenbaum is also Children’s and Mental Health Editor of The Lyme Times, is an advisor to Lyme Connection, and is affiliated with the Lyme Disease Association. She is a member of the International Lyme and Associated Diseases Society, the Council of Parent Attorneys and Advocates, and the National Association of Social Workers. Her presentations at both national and regional conferences have helped educate practitioners about how to work with patients who have Lyme disease. Her website is She lives in Connecticut.


Dorothy Kupcha Leland, has a daughter with Lyme disease and is vice-president of, a national advocacy group. She has organized patient conferences, testified before the California State Legislature and the state health department, and written Lyme-related articles for a variety of publications. Co-founder of a Lyme support group in Sacramento, California, she also gives tick bite prevention talks and writes the widely read blog Touched by Lyme. Follow her on Twitter @dorothyleland. She lives in Northern California.


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